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Data stewardship in FTLD research: Investigator and research participant views.
Arias JJ, Tyler AM, Beskow LM, Carillo MC, Dickinson S, Goldman J, Majumder MA, Mello MM, Snyder HM, Yokoyama JS. Arias JJ, et al. Among authors: majumder ma. Alzheimers Dement. 2024 Apr;20(4):2886-2893. doi: 10.1002/alz.13719. Epub 2024 Mar 8. Alzheimers Dement. 2024. PMID: 38456576 Free PMC article.
Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.
Gutierrez AM, Robinson JO, Raesz-Martinez R, Canfield I, Majumder MA, Scollon S, Desrosiers LR, Hsu RL, Allen-Rhoades W, Parsons DW, Plon SE, McGuire AL, Malek J. Gutierrez AM, et al. Among authors: majumder ma. J Adolesc Young Adult Oncol. 2023 Oct;12(5):773-781. doi: 10.1089/jayao.2022.0066. Epub 2023 Jan 2. J Adolesc Young Adult Oncol. 2023. PMID: 36595372 Free PMC article.
Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.
McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan R. McGuire AL, et al. Among authors: majumder ma. J Law Med Ethics. 2019 Mar;47(1):12-20. doi: 10.1177/1073110519840480. J Law Med Ethics. 2019. PMID: 30994067 Free PMC article.
Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents.
Gutierrez AM, Robinson JO, Smith HS, Desrosiers-Battu LR, Scollon SR, Canfield I, Hsu RL, Schneider NM, Parsons DW, Plon SE, Allen-Rhoades W, Majumder MA, Malek J, McGuire AL. Gutierrez AM, et al. Among authors: majumder ma. Genet Med. 2024 Aug;26(8):101168. doi: 10.1016/j.gim.2024.101168. Epub 2024 May 17. Genet Med. 2024. PMID: 38767058
Genomic Data-Sharing Practices.
Villanueva AG, Cook-Deegan R, Robinson JO, McGuire AL, Majumder MA. Villanueva AG, et al. Among authors: majumder ma. J Law Med Ethics. 2019 Mar;47(1):31-40. doi: 10.1177/1073110519840482. J Law Med Ethics. 2019. PMID: 30994063 Free PMC article.
Creating a data resource: what will it take to build a medical information commons?
Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL. Deverka PA, et al. Among authors: majumder ma. Genome Med. 2017 Sep 22;9(1):84. doi: 10.1186/s13073-017-0476-3. Genome Med. 2017. PMID: 28938910 Free PMC article.
110 results