Secondary use of patient data within decentralized studies using the example of rare diseases in Germany: A data scientist's exploration of process and lessons learned.
Zoch M, Gierschner C, Andreeff AK, Henke E, Sedlmayr M, Müller G, Tippmann J, Hebestreit H, Choukair D, Hoffmann GF, Fritz-Kebede F, Toepfner N, Berner R, Biergans S, Verbücheln R, Schaaf J, Fleck J, Wirth FN, Schepers J, Prasser F.
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Digit Health. 2024 Aug 10;10:20552076241265219. doi: 10.1177/20552076241265219. eCollection 2024 Jan-Dec.
Digit Health. 2024.
PMID: 39130526
Free PMC article.