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Page 1
The Data Use Ontology to streamline responsible access to human biomedical datasets.
Lawson J, Cabili MN, Kerry G, Boughtwood T, Thorogood A, Alper P, Bowers SR, Boyles RR, Brookes AJ, Brush M, Burdett T, Clissold H, Donnelly S, Dyke SOM, Freeberg MA, Haendel MA, Hata C, Holub P, Jeanson F, Jene A, Kawashima M, Kawashima S, Konopko M, Kyomugisha I, Li H, Linden M, Rodriguez LL, Morita M, Mulder N, Muller J, Nagaie S, Nasir J, Ogishima S, Ota Wang V, Paglione LD, Pandya RN, Parkinson H, Philippakis AA, Prasser F, Rambla J, Reinold K, Rushton GA, Saltzman A, Saunders G, Sofia HJ, Spalding JD, Swertz MA, Tulchinsky I, van Enckevort EJ, Varma S, Voisin C, Yamamoto N, Yamasaki C, Zass L, Guidry Auvil JM, Nyrönen TH, Courtot M. Lawson J, et al. Among authors: jeanson f. Cell Genom. 2021 Nov 10;1(2):None. doi: 10.1016/j.xgen.2021.100028. Cell Genom. 2021. PMID: 34820659 Free PMC article.
Simplifying research access to genomics and health data with Library Cards.
Cabili MN, Carey K, Dyke SOM, Brookes AJ, Fiume M, Jeanson F, Kerry G, Lash A, Sofia H, Spalding D, Tasse AM, Varma S, Pandya R. Cabili MN, et al. Among authors: jeanson f. Sci Data. 2018 Mar 14;5:180039. doi: 10.1038/sdata.2018.39. Sci Data. 2018. PMID: 29537396 Free PMC article.
Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M).
Woolley JP, Kirby E, Leslie J, Jeanson F, Cabili MN, Rushton G, Hazard JG, Ladas V, Veal CD, Gibson SJ, Tassé AM, Dyke SOM, Gaff C, Thorogood A, Knoppers BM, Wilbanks J, Brookes AJ. Woolley JP, et al. Among authors: jeanson f. NPJ Genom Med. 2018 Jul 23;3:17. doi: 10.1038/s41525-018-0057-4. eCollection 2018. NPJ Genom Med. 2018. PMID: 30062047 Free PMC article. Review.
GA4GH Passport standard for digital identity and access permissions.
Voisin C, Linden M, Dyke SOM, Bowers SR, Alper P, Barkley MP, Bernick D, Chao J, Courtot M, Jeanson F, Konopko MA, Kuba M, Lawson J, Leinonen J, Li S, Ota Wang V, Philippakis AA, Reinold K, Rushton GA, Spalding JD, Törnroos J, Tulchinsky I, Guidry Auvil JM, Nyrönen TH. Voisin C, et al. Among authors: jeanson f. Cell Genom. 2021 Nov 10;1(2):None. doi: 10.1016/j.xgen.2021.100030. Cell Genom. 2021. PMID: 34820660 Free PMC article.
GA4GH: International policies and standards for data sharing across genomic research and healthcare.
Rehm HL, Page AJH, Smith L, Adams JB, Alterovitz G, Babb LJ, Barkley MP, Baudis M, Beauvais MJS, Beck T, Beckmann JS, Beltran S, Bernick D, Bernier A, Bonfield JK, Boughtwood TF, Bourque G, Bowers SR, Brookes AJ, Brudno M, Brush MH, Bujold D, Burdett T, Buske OJ, Cabili MN, Cameron DL, Carroll RJ, Casas-Silva E, Chakravarty D, Chaudhari BP, Chen SH, Cherry JM, Chung J, Cline M, Clissold HL, Cook-Deegan RM, Courtot M, Cunningham F, Cupak M, Davies RM, Denisko D, Doerr MJ, Dolman LI, Dove ES, Dursi LJ, Dyke SOM, Eddy JA, Eilbeck K, Ellrott KP, Fairley S, Fakhro KA, Firth HV, Fitzsimons MS, Fiume M, Flicek P, Fore IM, Freeberg MA, Freimuth RR, Fromont LA, Fuerth J, Gaff CL, Gan W, Ghanaim EM, Glazer D, Green RC, Griffith M, Griffith OL, Grossman RL, Groza T, Auvil JMG, Guigó R, Gupta D, Haendel MA, Hamosh A, Hansen DP, Hart RK, Hartley DM, Haussler D, Hendricks-Sturrup RM, Ho CWL, Hobb AE, Hoffman MM, Hofmann OM, Holub P, Hsu JS, Hubaux JP, Hunt SE, Husami A, Jacobsen JO, Jamuar SS, Janes EL, Jeanson F, Jené A, Johns AL, Joly Y, Jones SJM, Kanitz A, Kato K, Keane TM, Kekesi-Lafrance K, Kelleher J, Kerry G, Khor SS, Knoppers BM, Konopko MA, Kosaki K, Kuba M, Lawson J, Leinonen … See abstract for full author list ➔ Rehm HL, et al. Among authors: jeanson f. Cell Genom. 2021 Nov 10;1(2):100029. doi: 10.1016/j.xgen.2021.100029. Cell Genom. 2021. PMID: 35072136 Free PMC article.
Getting your DUCs in a row - standardising the representation of Digital Use Conditions.
Jeanson F, Gibson SJ, Alper P, Bernier A, Woolley JP, Mietchen D, Strug A, Becker R, Kamerling P, Sanchez Gonzalez MDC, Mah N, Novakowski A, Wilkinson MD, Benhamed OM, Landi A, Krog GP, Müller H, Riaz U, Veal C, Holub P, van Enckevort E, Brookes AJ. Jeanson F, et al. Sci Data. 2024 May 8;11(1):464. doi: 10.1038/s41597-024-03280-6. Sci Data. 2024. PMID: 38719839 Free PMC article.
Common conditions of use elements. Atomic concepts for consistent and effective information governance.
Sanchez Gonzalez MDC, Kamerling P, Iermito M, Casati S, Riaz U, Veal CD, Maini M, Jeanson F, Benhamed OM, van Enckevort E, Landi A, Mimouni Y, Le Cornec C, Coviello DA, Franchin T, Fusco F, Ramírez García JA, van der Zanden LFM, Bernier A, Wilkinson MD, Mueller H, Gibson SJ, Brookes AJ. Sanchez Gonzalez MDC, et al. Among authors: jeanson f. Sci Data. 2024 May 8;11(1):465. doi: 10.1038/s41597-024-03279-z. Sci Data. 2024. PMID: 38719810 Free PMC article.
Brain-CODE: A Secure Neuroinformatics Platform for Management, Federation, Sharing and Analysis of Multi-Dimensional Neuroscience Data.
Vaccarino AL, Dharsee M, Strother S, Aldridge D, Arnott SR, Behan B, Dafnas C, Dong F, Edgecombe K, El-Badrawi R, El-Emam K, Gee T, Evans SG, Javadi M, Jeanson F, Lefaivre S, Lutz K, MacPhee FC, Mikkelsen J, Mikkelsen T, Mirotchnick N, Schmah T, Studzinski CM, Stuss DT, Theriault E, Evans KR. Vaccarino AL, et al. Among authors: jeanson f. Front Neuroinform. 2018 May 23;12:28. doi: 10.3389/fninf.2018.00028. eCollection 2018. Front Neuroinform. 2018. PMID: 29875648 Free PMC article.
FAIR in action: Brain-CODE - A neuroscience data sharing platform to accelerate brain research.
Behan B, Jeanson F, Cheema H, Eng D, Khimji F, Vaccarino AL, Gee T, Evans SG, MacPhee FC, Dong F, Shahnazari S, Sparks A, Martens E, Lasalandra B, Arnott SR, Strother SC, Javadi M, Dharsee M, Evans KR, Nylen K, Mikkelsen T. Behan B, et al. Among authors: jeanson f. Front Neuroinform. 2023 May 18;17:1158378. doi: 10.3389/fninf.2023.1158378. eCollection 2023. Front Neuroinform. 2023. PMID: 37274750 Free PMC article.
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