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How are adults with capacity-affecting conditions and associated communication difficulties included in ethically sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales.
Bunning K, Jimoh OF, Heywood R, Killett A, Ryan H, Shiggins C, Langdon PE. Bunning K, et al. Among authors: shiggins c. BMJ Open. 2022 Mar 31;12(3):e059036. doi: 10.1136/bmjopen-2021-059036. BMJ Open. 2022. PMID: 35361652 Free PMC article.
Inclusion of adults with conditions that have the potential to affect capacity and or communication in research: triangulation from a mixed-methods study of current practice and values across multiple stakeholders.
Killett A, Langdon PE, Ryan H, Shiggins C, Heywood R, Jimoh OF, Redley M, Bunning K. Killett A, et al. Among authors: shiggins c. BMJ Open. 2023 Apr 28;13(4):e068366. doi: 10.1136/bmjopen-2022-068366. BMJ Open. 2023. PMID: 37116998 Free PMC article.
‛Until you're in the chair and executing your role, you don't know': A qualitative study of the needs and perspectives of people with stroke-related communication disabilities when returning to vocational activity.
Lanyon L, Shiggins C, Baker C, Stein SA, O'Keefe S, Schneider EJ, Godecke E, Radford K, Lannin NA. Lanyon L, et al. Among authors: shiggins c. Int J Lang Commun Disord. 2024 Nov-Dec;59(6):2655-2670. doi: 10.1111/1460-6984.13106. Epub 2024 Aug 24. Int J Lang Commun Disord. 2024. PMID: 39180389