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Development of an international standard set of clinical and patient-reported outcomes for children and adults with congenital heart disease: a report from the International Consortium for Health Outcomes Measurement Congenital Heart Disease Working Group.
Hummel K, Whittaker S, Sillett N, Basken A, Berghammer M, Chalela T, Chauhan J, Garcia LA, Hasan B, Jenkins K, Ladak LA, Madsen N, March A, Pearson D, Schwartz SM, St Louis JD, van Beynum I, Verstappen A, Williams R, Zheleva B, Hom L, Martin GR. Hummel K, et al. Among authors: berghammer m. Eur Heart J Qual Care Clin Outcomes. 2021 Jul 21;7(4):354-365. doi: 10.1093/ehjqcco/qcab009. Eur Heart J Qual Care Clin Outcomes. 2021. PMID: 33576374 Review.
Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): rationale, design, and methods.
Apers S, Kovacs AH, Luyckx K, Alday L, Berghammer M, Budts W, Callus E, Caruana M, Chidambarathanu S, Cook SC, Dellborg M, Enomoto J, Eriksen K, Fernandes SM, Jackson JL, Johansson B, Khairy P, Kutty S, Menahem S, Rempel G, Sluman MA, Soufi A, Thomet C, Veldtman G, Wang JK, White K, Moons P; APPROACH-IS consortium; International Society for Adult Congenital Heart Disease (ISACHD). Apers S, et al. Among authors: berghammer m. Int J Cardiol. 2015 Jan 20;179:334-42. doi: 10.1016/j.ijcard.2014.11.084. Epub 2014 Nov 8. Int J Cardiol. 2015. PMID: 25464481 Free article. Clinical Trial.
Illness perceptions in adult congenital heart disease: A multi-center international study.
Rassart J, Apers S, Kovacs AH, Moons P, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Rempel GR, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Luyckx K; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Rassart J, et al. Among authors: berghammer m. Int J Cardiol. 2017 Oct 1;244:130-138. doi: 10.1016/j.ijcard.2017.06.072. Epub 2017 Jun 26. Int J Cardiol. 2017. PMID: 28669511
Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors.
Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Moons P, et al. Among authors: berghammer m. Int J Cardiol. 2018 Jan 15;251:34-41. doi: 10.1016/j.ijcard.2017.10.064. Epub 2017 Oct 21. Int J Cardiol. 2018. PMID: 29107358 Clinical Trial.
Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe.
Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S; APPROACH-IS Consortium; International Society for Adult Congenital Heart Disease (ISACHD). Moons P, et al. Among authors: berghammer m. Int J Cardiol. 2019 Jan 1;274:93-99. doi: 10.1016/j.ijcard.2018.07.103. Epub 2018 Jul 23. Int J Cardiol. 2019. PMID: 30077534
48 results