Kaye J - Search Results

1

The governance structure for data access in the DIRECT consortium: an innovative medicines initiative (IMI) project.

Teare HJA, de Masi F, Banasik K, Barnett A, Herrgard S, Jablonka B, Postma JWM, McDonald TJ, Forgie I, Chmura PJ, Rydzka EK, Gupta R, Brunak S, Pearson E, Kaye J. Teare HJA, et al. Among authors: kaye j. Life Sci Soc Policy. 2018 Sep 4;14(1):20. doi: 10.1186/s40504-018-0083-0. Life Sci Soc Policy. 2018. PMID: 30182269 Free PMC article.

2

Dynamic consent: a patient interface for twenty-first century research networks.

Kaye J, Whitley EA, Lund D, Morrison M, Teare H, Melham K. Kaye J, et al. Eur J Hum Genet. 2015 Feb;23(2):141-6. doi: 10.1038/ejhg.2014.71. Epub 2014 May 7. Eur J Hum Genet. 2015. PMID: 24801761 Free PMC article.

3

The emerging need for family-centric initiatives for obtaining consent in personal genome research.

Minari J, Teare H, Mitchell C, Kaye J, Kato K. Minari J, et al. Among authors: kaye j. Genome Med. 2014 Dec 17;6(12):118. doi: 10.1186/s13073-014-0118-y. eCollection 2014. Genome Med. 2014. PMID: 25593596 Free PMC article.

4

StemBANCC: Governing Access to Material and Data in a Large Stem Cell Research Consortium.

Morrison M, Klein C, Clemann N, Collier DA, Hardy J, Heisserer B, Cader MZ, Graf M, Kaye J. Morrison M, et al. Among authors: kaye j. Stem Cell Rev Rep. 2015 Oct;11(5):681-7. doi: 10.1007/s12015-015-9599-3. Stem Cell Rev Rep. 2015. PMID: 26024842 Free PMC article. Review.

5

'Pop-Up' Governance: developing internal governance frameworks for consortia: the example of UK10K.

Kaye J, Muddyman D, Smee C, Kennedy K, Bell J; UK10K. Kaye J, et al. Life Sci Soc Policy. 2015;11:10. doi: 10.1186/s40504-015-0028-9. Epub 2015 Sep 28. Life Sci Soc Policy. 2015. PMID: 26412243 Free PMC article.

6

The evolution of withdrawal: negotiating research relationships in biobanking.

Melham K, Moraia LB, Mitchell C, Morrison M, Teare H, Kaye J. Melham K, et al. Among authors: kaye j. Life Sci Soc Policy. 2014;10:16. doi: 10.1186/s40504-014-0016-5. Epub 2014 Oct 5. Life Sci Soc Policy. 2014. PMID: 26573981 Free PMC article.

7

Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.

Woolley JP, McGowan ML, Teare HJ, Coathup V, Fishman JR, Settersten RA Jr, Sterckx S, Kaye J, Juengst ET. Woolley JP, et al. Among authors: kaye j. BMC Med Ethics. 2016 Jun 4;17(1):33. doi: 10.1186/s12910-016-0117-1. BMC Med Ethics. 2016. PMID: 27260081 Free PMC article.

8

Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan.

Coathup V, Teare HJ, Minari J, Yoshizawa G, Kaye J, Takahashi MP, Kato K. Coathup V, et al. Among authors: kaye j. BMC Med Ethics. 2016 Aug 24;17(1):51. doi: 10.1186/s12910-016-0132-2. BMC Med Ethics. 2016. PMID: 27553007 Free PMC article.

9

Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.

Budin-Ljøsne I, Teare HJ, Kaye J, Beck S, Bentzen HB, Caenazzo L, Collett C, D'Abramo F, Felzmann H, Finlay T, Javaid MK, Jones E, Katić V, Simpson A, Mascalzoni D. Budin-Ljøsne I, et al. Among authors: kaye j. BMC Med Ethics. 2017 Jan 25;18(1):4. doi: 10.1186/s12910-016-0162-9. BMC Med Ethics. 2017. PMID: 28122615 Free PMC article.

10

The RUDY study: using digital technologies to enable a research partnership.

Teare HJA, Hogg J, Kaye J, Luqmani R, Rush E, Turner A, Watts L, Williams M, Javaid MK. Teare HJA, et al. Among authors: kaye j. Eur J Hum Genet. 2017 Jun;25(7):816-822. doi: 10.1038/ejhg.2017.57. Epub 2017 Apr 26. Eur J Hum Genet. 2017. PMID: 28443622 Free PMC article.

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