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Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures.
Acquadro C, Patrick DL, Eremenco S, Martin ML, Kuliś D, Correia H, Conway K; International Society for Quality of Life Research (ISOQOL) Translation and Cultural Adaptation Special Interest Group (TCA-SIG). Acquadro C, et al. Among authors: kulis d. J Patient Rep Outcomes. 2017;2(1):8. doi: 10.1186/s41687-018-0035-8. Epub 2018 Feb 21. J Patient Rep Outcomes. 2017. PMID: 29757337 Free PMC article. Review.
Acceptability and usefulness of the EORTC 'Write In three Symptoms/Problems' (WISP): a brief open-ended instrument for symptom assessment in cancer patients.
Rojas-Concha L, Arrarrás JI, Conroy T, Chalk T, Guberti M, Holzner B, Husson O, Kuliś D, Shamieh O, Piccinin C, Puga MJ, Rohde G, Groenvold M; on behalf the EORTC Quality of Life Group. Rojas-Concha L, et al. Among authors: kulis d. Health Qual Life Outcomes. 2024 Mar 26;22(1):28. doi: 10.1186/s12955-024-02244-z. Health Qual Life Outcomes. 2024. PMID: 38532393 Free PMC article.
International Phase IV Field Study for the Reliability and Validity of the European Organisation for Research and Treatment of Cancer Thyroid Cancer Module EORTC QLQ-THY34.
Singer S, Al-Ibraheem A, Pinto M, Iakovou I, Østhus AA, Hammerlid E, Locati LD, Gamper E, Ignacio J, Jordan SJ, Kiyota N, Buettner M, Engesser D, Canotilho R, Ioannidis G, Husson O, Gama RR, Fanetti G, Moss L, Inhestern J, Andry G, Fuehrer D, Kuliś D, Rimmele H, Sykiotis G. Singer S, et al. Among authors: kulis d. Thyroid. 2023 Sep;33(9):1078-1089. doi: 10.1089/thy.2023.0221. Epub 2023 Aug 9. Thyroid. 2023. PMID: 37450344
Health-related quality of life in patients with COVID-19; international development of a patient-reported outcome measure.
Amdal CD, Taylor K, Kuliś D, Falk RS, Bottomley A, Arraras JI, Barte JH, Darlington AS, Hofsø K, Holzner B, Jørgensen NMH, Mariano MP, Pe M, Piccinin C, Riccetti N, Schranz M, Wheelwright S, Bjordal K. Amdal CD, et al. Among authors: kulis d. J Patient Rep Outcomes. 2022 Mar 26;6(1):26. doi: 10.1186/s41687-022-00434-1. J Patient Rep Outcomes. 2022. PMID: 35348945 Free PMC article.
Trends in translation requests and arising issues regarding cultural adaptation.
Kuliś D, Arnott M, Greimel ER, Bottomley A, Koller M; European Organisation for Research and Treatment of Cancer Quality of Life Group. Kuliś D, et al. Expert Rev Pharmacoecon Outcomes Res. 2011 Jun;11(3):307-14. doi: 10.1586/erp.11.27. Expert Rev Pharmacoecon Outcomes Res. 2011. PMID: 21671700 Review.
Use of the lung cancer-specific Quality of Life Questionnaire EORTC QLQ-LC13 in clinical trials: A systematic review of the literature 20 years after its development.
Koller M, Warncke S, Hjermstad MJ, Arraras J, Pompili C, Harle A, Johnson CD, Chie WC, Schulz C, Zeman F, van Meerbeeck JP, Kuliś D, Bottomley A; European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group; EORTC Lung Cancer Group. Koller M, et al. Among authors: kulis d. Cancer. 2015 Dec 15;121(24):4300-23. doi: 10.1002/cncr.29682. Epub 2015 Oct 9. Cancer. 2015. PMID: 26451520 Free article. Review.
EORTC QLQ-COMU26: a questionnaire for the assessment of communication between patients and professionals. Phase III of the module development in ten countries.
Arraras JI, Wintner LM, Sztankay M, Tomaszewski KA, Hofmeister D, Costantini A, Bredart A, Young T, Kuljanic K, Tomaszewska IM, Kontogianni M, Chie WC, Kulis D, Greimel E; Conducted on behalf of the EORTC Quality of Life Group. Arraras JI, et al. Among authors: kulis d. Support Care Cancer. 2017 May;25(5):1485-1494. doi: 10.1007/s00520-016-3536-0. Epub 2016 Dec 26. Support Care Cancer. 2017. PMID: 28025709 Clinical Trial.
An international study to revise the EORTC questionnaire for assessing quality of life in lung cancer patients.
Koller M, Hjermstad MJ, Tomaszewski KA, Tomaszewska IM, Hornslien K, Harle A, Arraras JI, Morag O, Pompili C, Ioannidis G, Georgiou M, Navarra C, Chie WC, Johnson CD, Himpel A, Schulz C, Bohrer T, Janssens A, Kuliś D, Bottomley A. Koller M, et al. Among authors: kulis d. Ann Oncol. 2017 Nov 1;28(11):2874-2881. doi: 10.1093/annonc/mdx453. Ann Oncol. 2017. PMID: 28945875 Free article. Clinical Trial.
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