Robinson JO - Search Results

1

Participants' recall and understanding of genomic research and large-scale data sharing.

Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL. Robinson JO, et al. J Empir Res Hum Res Ethics. 2013 Oct;8(4):42-52. doi: 10.1525/jer.2013.8.4.42. J Empir Res Hum Res Ethics. 2013. PMID: 24169421 Free PMC article. Clinical Trial.

2

Experiences and attitudes of genome investigators regarding return of individual genetic test results.

Ramoni RB, McGuire AL, Robinson JO, Morley DS, Plon SE, Joffe S. Ramoni RB, et al. Among authors: robinson jo. Genet Med. 2013 Nov;15(11):882-7. doi: 10.1038/gim.2013.58. Epub 2013 May 2. Genet Med. 2013. PMID: 23639901 Free PMC article.

3

Returning genetic research results: study type matters.

McGuire AL, Robinson JO, Ramoni RB, Morley DS, Jofe S, Plon SE. McGuire AL, et al. Among authors: robinson jo. Per Med. 2013 Jan;10(1):27-34. doi: 10.2217/pme.12.109. Per Med. 2013. PMID: 24077424 Free PMC article.

4

Pediatric data sharing in genomic research: attitudes and preferences of parents.

Burstein MD, Robinson JO, Hilsenbeck SG, McGuire AL, Lau CC. Burstein MD, et al. Among authors: robinson jo. Pediatrics. 2014 Apr;133(4):690-7. doi: 10.1542/peds.2013-1592. Epub 2014 Mar 10. Pediatrics. 2014. PMID: 24616359 Free PMC article. Clinical Trial.

5

Summarizing polygenic risks for complex diseases in a clinical whole-genome report.

Kong SW, Lee IH, Leshchiner I, Krier J, Kraft P, Rehm HL, Green RC, Kohane IS, MacRae CA; MedSeq Project. Kong SW, et al. Genet Med. 2015 Jul;17(7):536-44. doi: 10.1038/gim.2014.143. Epub 2014 Oct 23. Genet Med. 2015. PMID: 25341114 Free PMC article.

6

'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project.

Vassy JL, Christensen KD, Slashinski MJ, Lautenbach DM, Raghavan S, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Lehmann LS, Murray MF, Green RC, McGuire AL. Vassy JL, et al. Among authors: robinson jo. Per Med. 2015;12(1):23-32. doi: 10.2217/pme.14.68. Per Med. 2015. PMID: 25642274 Free PMC article.

7

A systematic approach to the reporting of medically relevant findings from whole genome sequencing.

McLaughlin HM, Ceyhan-Birsoy O, Christensen KD, Kohane IS, Krier J, Lane WJ, Lautenbach D, Lebo MS, Machini K, MacRae CA, Azzariti DR, Murray MF, Seidman CE, Vassy JL, Green RC, Rehm HL; MedSeq Project. McLaughlin HM, et al. BMC Med Genet. 2014 Dec 14;15:134. doi: 10.1186/s12881-014-0134-1. BMC Med Genet. 2014. PMID: 25714468 Free PMC article.

8

Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing.

Robinson JO, Carroll TM, Feuerman LZ, Perry DL, Hoffman-Andrews L, Walsh RC, Christensen KD, Green RC, McGuire AL; MedSeq Project Team. Robinson JO, et al. J Empir Res Hum Res Ethics. 2016 Feb;11(1):21-30. doi: 10.1177/1556264615624078. Epub 2016 Feb 28. J Empir Res Hum Res Ethics. 2016. PMID: 26928896 Free PMC article.

9

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium. Green RC, et al. Am J Hum Genet. 2016 Jun 2;98(6):1051-1066. doi: 10.1016/j.ajhg.2016.04.011. Epub 2016 May 12. Am J Hum Genet. 2016. PMID: 27181682 Free PMC article.

10

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey.

Pereira S, Robinson JO, Peoples HA, Gutierrez AM, Majumder MA, McGuire AL, Rothstein MA. Pereira S, et al. Among authors: robinson jo. PLoS One. 2017 Sep 19;12(9):e0184525. doi: 10.1371/journal.pone.0184525. eCollection 2017. PLoS One. 2017. PMID: 28926626 Free PMC article.

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