The lived experiences and unmet needs of prostate and colorectal male cancer survivors in rural Virginia: A qualitative study

Abstract

Background: The goal of this study was to gain an in-depth understanding about the lived experiences and unmet needs of rural male cancer survivors.

Methods: Focus groups were conducted with male survivors of prostate (N = 14) and colorectal cancers (N = 10), from rural Virginia. Demographic and clinical information were collected via surveys. A focus group guide contained questions about needs, lifestyles, and social networks of rural male cancer survivors. Focus group data were analyzed using Braun and Clarke's thematic analysis guidelines.

Results: Four primary themes emerged from the data: (1) contending with health problems, (2) quality and availability of health care services, (3) coping strategies to navigate survivorship, and (4) advocating for cancer prevention. Survivors had to contend with physical and emotional problems, which were a result of their cancer treatments. Due to their rural location, survivors had difficulty accessing health care services and had a limited understanding of the cancer-related resources that existed in their counties. Family support, religiosity and acceptance served as important coping strategies. Many felt strongly about promoting cancer-related education and awareness.

Conclusion: The lived experiences and unmet needs of rural male cancer survivors comprised several challenges, which included health problems and lack of health care access. Coping mechanisms comprised reliance on familial bonds and religion. Findings from this study reveal the need for tailored interventions to target the health care, psychosocial, and informational needs of rural male cancer survivors.

Keywords: colorectal cancer; male cancer survivors; prostate cancer; rural; survivorship.