Acknowledgement and use of advance care directives and goals of care by emergency department staff: a mixed method post intervention study

BMC Palliat Care. 2024 Oct 1;23(1):235. doi: 10.1186/s12904-024-01566-5.

Abstract

Introduction: Advance Care Planning (ACP) refers to a process that includes Advance Care Directives (ACD) and Goals of Care (GOC), a practice widely used for over three decades. Following the findings of an audit and a cross-sectional study in 2019 and 2021 respectively, we implemented several educational and other interventional strategies aimed at enhancing staff awareness and emphasizing the importance of recognizing and documenting of ACD/GOC. The aim of this study was to evaluate the acknowledgement and use of ACD and GOC by Emergency Department (ED) staff following these interventions.

Method: We used a mixed methods approach, incorporating both observational and cross-sectional designs with reflexive thematic analysis. Data extraction for the observational study took place between 1st April and 30th June 2023 focusing on a target population of randomly sampled adults aged ≥ 65 years. Demographics and other ACD and GOC related patients' clinical data were collected. Data collection for the cross-sectional study occurred between 19th July and 13th September 2023 targeting all ED staff. Information gathered included demographics, awareness about ACD and GOC, including storage location and implementation, as well as knowledge of Medical Treatment decision Makers (MTDM), a jurisdictional term identifying a person legally appointed to make healthcare decisions on behalf of someone who lacks decision-making capacity and other Victorian State legislative requirements were collected.

Results: In the observational period, 22,335 patients attended the ED and 19% (n = 6546) qualified for inclusion from which a sample of 308 patients were randomly extracted. We found ACD documents were noted in the medical records of 6.5% of the sample, fewer than 8% identified in our previous study. There was no correlation between ACD record availability and age (p = 0.054; CI ranging from - 0.065 to 7.768). The response rate for the cross-sectional survey was 12% (n = 340) in contrast to earlier study with 28% (n = 476) respondents. Staff knowledge and familiarity with ACD was 25% and GOC 45%.

Conclusion: After implementing interventions in staff education and ACP awareness, we found that ACD documentation did not improve. However, GOC documentation increased in the context of heightened institutional awareness and integration into the Electronic Medical Records (EMR).

Keywords: Advance Care Planning; Advance care directives; Emergency Department; Goals of care; Medical treatment decision maker.

Publication types

  • Observational Study

MeSH terms

  • Advance Care Planning / standards
  • Advance Care Planning / statistics & numerical data
  • Advance Care Planning / trends
  • Advance Directives* / psychology
  • Advance Directives* / statistics & numerical data
  • Aged
  • Aged, 80 and over
  • Cross-Sectional Studies
  • Emergency Service, Hospital* / organization & administration
  • Emergency Service, Hospital* / statistics & numerical data
  • Female
  • Humans
  • Male
  • Middle Aged
  • Patient Care Planning