Listening to the Voice of the Patient in RSV Research

Andrew W Lee; Rachael Thomas; Bowen Chung; Louis J Bont

doi:10.1097/INF.0000000000004512

Listening to the Voice of the Patient in RSV Research

Pediatr Infect Dis J. 2024 Sep 4. doi: 10.1097/INF.0000000000004512. Online ahead of print.

Authors

Andrew W Lee¹, Rachael Thomas², Bowen Chung³, Louis J Bont^{4

5}

Affiliations

¹ From the University Medical Center, Utrecht, The Netherlands.
² The University of Cumbria, Carlisle, United Kingdom.
³ University of California Los Angeles, Los Angeles, California.
⁴ Department of Pediatrics, University Medical Center Utrecht, Utrecht.
⁵ ReSViNET (Respiratory Syncytial Virus Foundation), Zeist, The Netherlands.

PMID: 39230276
DOI: 10.1097/INF.0000000000004512

Abstract

Patient and public involvement in research refers to patients or caregivers with disease experience contributing to the design, conduct or dissemination of results from research. Patient and public involvement has given rise to new fields in healthcare-oriented research and has the potential to transform infectious diseases through interventional trials. Our recommendations and best practices from years of organizing respiratory syncytial virus parent networks are provided.