Communications, engagement, and dissemination strategies for the HEALthy Brain and Child Development (HBCD) Study

Dev Cogn Neurosci. 2024 Oct:69:101431. doi: 10.1016/j.dcn.2024.101431. Epub 2024 Aug 13.

Abstract

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Study success depends on the engagement and inclusion of diverse populations of pregnant participants and their children across the United States, including those at high and low risk for prenatal substance use. The Communications, Engagement, and Dissemination (CED) Committee is responsible for the development and implementation of a strategy to promote awareness about the study, encourage participation, and engage HBCD families, community partners, and collaborators. Initial work involved developing versatile recruitment and awareness materials with a consistent and inclusive message that reduces stigma and negative bias towards marginalized populations, including people with substance use and other mental health conditions. These efforts were shaped by an integrated product development workflow and early engagement with HBCD partners to address challenges. Ongoing work includes the expansion of HBCD outreach through newsletters and social media platforms with an emphasis on protecting participant privacy. Future activities will focus on disseminating scientific information through generation of infographics and webinars that will inform participants, families, and the public of discoveries generated from HBCD Study data.

Keywords: Brain development; Communication; Dissemination; Early-life development; Engagement; HBCD; Prenatal exposures; Social media.

MeSH terms

  • Brain / growth & development
  • Child
  • Child Development*
  • Child, Preschool
  • Communication
  • Female
  • Humans
  • Information Dissemination / methods
  • Longitudinal Studies
  • Pregnancy
  • Prospective Studies
  • United States