The French Experience with a Population-Based Esophageal Atresia Registry (RENATO)

Eur J Pediatr Surg. 2024 Apr;34(2):137-142. doi: 10.1055/a-2206-6837. Epub 2023 Nov 8.

Abstract

This paper presented a national register for esophageal atresia (EA) started in January 2008. We report our experience about the conception of this database and its coordination. Data management and data quality are also detailed. In 2023, more than 2,500 patients with EA are included. Prevalence of EA in France was calculated at 1.8/10,000 live birth. Main clinical results are listed with scientific publications issued directly from the register.

MeSH terms

  • Data Management
  • Esophageal Atresia* / epidemiology
  • Esophageal Atresia* / surgery
  • France / epidemiology
  • Humans
  • Prevalence
  • Registries
  • Tracheoesophageal Fistula* / epidemiology
  • Tracheoesophageal Fistula* / surgery