An evaluation of initial engagement with a virtual group-based psychological treatment for functional seizures

Epilepsy Behav. 2021 Dec:125:108384. doi: 10.1016/j.yebeh.2021.108384. Epub 2021 Nov 14.

Abstract

Functional seizures are a common neurological presentation but access to evidence-based treatments is sporadic and often delayed. Patient engagement is an essential prerequisite to any treatment benefits, but previous research has not investigated engagement with psychological group treatments. In this service evaluation, we compared patients who initially engaged and disengaged from an online CBT-based group treatment on demographic and clinical variables, and illness-related beliefs. A self-report survey was used to explore reasons for disengagement. Of 64 patients invited to the group treatment, 39 (60.1%) disengaged before the first session. Older age was associated with engagement with the functional seizures group. There were no other group differences between demographic, clinical, or belief-based variables. Patients who disengaged reported the timing and format as barriers to joining and had preferences for individual and in-person interventions. These findings have implications for the role of clinicians in providing regular tangible information about referral pathways, and motivating patients to engage with available treatments.

Keywords: CBT; Functional neurological disorders; Patient engagement; Psychological treatment; Service evaluation; Virtual therapy.

MeSH terms

  • Aged
  • Humans
  • Patient Participation*
  • Seizures* / therapy
  • Self Report
  • Surveys and Questionnaires