Dermatology COVID-19 Registries: Updates and Future Directions

Esther E Freeman; Grace C Chamberlin; Devon E McMahon; George J Hruza; Dmitri Wall; Nekma Meah; Rodney Sinclair; Esther A Balogh; Steven R Feldman; Michelle A Lowes; Angelo V Marzano; Haley B Naik; Leslie Castelo-Soccio; Irene Lara-Corrales; Kelly M Cordoro; Satveer K Mahil; Christopher E M Griffiths; Catherine H Smith; Alan D Irvine; Phyllis I Spuls; Carsten Flohr; Lars E French

doi:10.1016/j.det.2021.05.013

Dermatology COVID-19 Registries: Updates and Future Directions

Dermatol Clin. 2021 Oct;39(4):575-585. doi: 10.1016/j.det.2021.05.013. Epub 2021 May 31.

Authors

Esther E Freeman¹, Grace C Chamberlin², Devon E McMahon³, George J Hruza⁴, Dmitri Wall⁵, Nekma Meah⁶, Rodney Sinclair⁷, Esther A Balogh⁸, Steven R Feldman⁸, Michelle A Lowes⁹, Angelo V Marzano¹⁰, Haley B Naik¹¹, Leslie Castelo-Soccio¹², Irene Lara-Corrales¹³, Kelly M Cordoro¹¹, Satveer K Mahil¹⁴, Christopher E M Griffiths¹⁵, Catherine H Smith¹⁴, Alan D Irvine¹⁶, Phyllis I Spuls¹⁷, Carsten Flohr¹⁸, Lars E French¹⁹

Affiliations

¹ Department of Dermatology, Massachusetts General Hospital, Harvard Medical School, 55 Fruit St, Boston, MA 02114, USA; Medical Practice Evaluation Center, Mongan Institute, Massachusetts General Hospital, Boston, MA, USA. Electronic address: efreeman@mgh.harvard.edu.
² Medical Practice Evaluation Center, Mongan Institute, Massachusetts General Hospital, Boston, MA, USA.
³ Department of Dermatology, Massachusetts General Hospital, Harvard Medical School, 55 Fruit St, Boston, MA 02114, USA.
⁴ Department of Dermatology, Saint Louis University School of Medicine, Saint Louis, MO, USA.
⁵ Hair Restoration Blackrock, Dublin, Ireland; National and International Skin Registry Solutions (NISR), Charles Institute of Dermatology, Dublin, Ireland; School of Medicine, University College Dublin, Dublin, Ireland.
⁶ St Helens & Knowsley NHS Trust, Marshalls Cross Road, St. Helens WA9 3DA, UK; Manchester University, Faculty of Biology, Medicine and Health, Oxford Road, Manchester, UK.
⁷ Sinclair Dermatology, East Melbourne, Victoria 3002, Australia.
⁸ Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston Salem, NC, USA.
⁹ The Rockefeller University, New York, NY, USA.
¹⁰ Dermatology Unit, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan, Italy; Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Milan, Italy.
¹¹ Department of Dermatology, University of California, San Francisco, CA, USA.
¹² Section of Pediatric Dermatology, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
¹³ Section of Pediatric Dermatology, Hospital for Sick Children, Toronto, Canada.
¹⁴ St John's Institute of Dermatology, King's College London and Guy's & St Thomas' NHS Foundation Trust, London, UK.
¹⁵ Dermatology Centre, Salford Royal Hospital, NIHR Manchester Biomedical Research Centre, University of Manchester, Manchester, UK.
¹⁶ Clinical Medicine, Trinity College Dublin, Dublin, Ireland.
¹⁷ Department of Dermatology, Public Health and Epidemiology; Immunity and Infections, Amsterdam University Medical Centers, Location Academic Medical Center, Amsterdam, the Netherlands.
¹⁸ Unit for Population-Based Dermatology Research, St John's Institute of Dermatology, King's College London and Guy's & St Thomas' NHS Foundation Trust, London, UK.
¹⁹ Department of Dermatology, University Hospital, Munich University of Ludwig Maximilian, Munich, Germany; Dr. Philip Frost Department of Dermatology and Cutaneous Surgery, University of Miami Miller School of Medicine, Miami, Florida, USA.

Abstract

During the COVID-19 pandemic, rapid, real-world evidence is essential for the development of knowledge and subsequent public health response. In dermatology, provider-facing and patient-facing registries focused on COVID-19 have been important sources of research and new information aimed at guiding optimal patient care. The 7 dermatology registries included in this update now include more than 8000 case reports sourced from physicians and patients from countries all over the world.

Keywords: Atopic dermatitis; COVID-19; Dermatology; Global health; Hidradenitis suppurativa; Psoriasis; Registry; SARS-CoV-2.

Publication types

Review

MeSH terms

COVID-19 / epidemiology*
Disease Susceptibility
Humans
Prevalence
Registries / statistics & numerical data*
Risk Factors
Skin Diseases / epidemiology*

Abstract

Publication types

MeSH terms

Grants and funding