Ongoing care for the patient with an anorectal malfromation; transitioning to adulthood

Semin Pediatr Surg. 2020 Dec;29(6):150991. doi: 10.1016/j.sempedsurg.2020.150991. Epub 2020 Nov 8.

Abstract

Planned health care transition can improve the ability of young adults to manage their own health care to effecively use health services and ultimately maximize life-long functioning and well-being. Transitional care is a purposeful, planned process that addresses the medical, psychosocial and educational needs of adolescents and young adults with chronic physical and medical conditions as they move from child-centered to adult-oriented healthcare systems. Unsuccessful surgical transtion may result in physical and mental health implications for young patients, negative long-term outcomes and suboptimal use of health care resources. Anorectal malformation and Hirschsprung patients are an especially vulnerable patient population with ongoing surgical, physiologic and pyschosocial challenges.

Publication types

  • Review

MeSH terms

  • Adolescent
  • Adult
  • Anorectal Malformations / physiopathology
  • Anorectal Malformations / psychology
  • Anorectal Malformations / therapy*
  • Humans
  • Patient Care Planning / organization & administration
  • Patient Care Team / organization & administration
  • Professional-Patient Relations
  • Transition to Adult Care* / organization & administration
  • Young Adult