Dementia in People with a Turkish Migration Background: Experiences and Utilization of Healthcare Services

J Alzheimers Dis. 2020;77(2):865-875. doi: 10.3233/JAD-200184.

Abstract

Background: As the proportion of older people with migration background (PwM) increases, the proportion of older PwM with dementia might also increase. Dementia is underdiagnosed in this group and a large proportion of PwM with dementia and family caregivers are not properly supported. Healthcare utilization is lower among older migrant populations. Thus, a better understanding of how PwM and family caregivers perceive their situation and how they experience healthcare services is needed to improve utilization of the healthcare system.

Objective: Analyze how family caregivers of PwM with dementia experience their situation, why healthcare services are utilized less often, and what can be done to reverse this.

Methods: Eight semi-structured interviews were conducted with people with Turkish migration background caring for PwM with dementia. Qualitative content analysis was used for data analysis.

Results: Daily care was performed by one family member with the support of others. Healthcare services were used by most participants. Participants identified a need for better access to relevant information and incorporation of Turkish culture into healthcare services.

Conclusion: PwM face similar challenges in taking care of persons with dementia as those without migration background. There is a willingness to use services, and services embracing Turkish culture would help to reduce hesitance and make affected people feel more comfortable, thereby increasing utilization and satisfaction. A limitation of this study is that participants were already connected to health services, which may not reflect the help-seeking behavior of those in the Turkish community who are not involved in healthcare.

Keywords: Dementia; Turkish migration background; healthcare; healthcare services; migration; utilization.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Caregivers / psychology*
  • Dementia / ethnology*
  • Dementia / psychology*
  • Dementia / therapy
  • Female
  • Germany / ethnology
  • Humans
  • Male
  • Middle Aged
  • Patient Acceptance of Health Care / ethnology*
  • Patient Acceptance of Health Care / psychology*
  • Transients and Migrants / psychology*
  • Turkey / ethnology