Rationale for a Swedish cohort consortium

Ups J Med Sci. 2019 Jan;124(1):21-28. doi: 10.1080/03009734.2018.1556754. Epub 2019 Jan 8.

Abstract

We herein outline the rationale for a Swedish cohort consortium, aiming to facilitate greater use of Swedish cohorts for world-class research. Coordination of all Swedish prospective population-based cohorts in a common infrastructure would enable more precise research findings and facilitate research on rare exposures and outcomes, leading to better utilization of study participants' data, better return of funders' investments, and higher benefit to patients and populations. We motivate the proposed infrastructure partly by lessons learned from a pilot study encompassing data from 21 cohorts. We envisage a standing Swedish cohort consortium that would drive development of epidemiological research methods and strengthen the Swedish as well as international epidemiological competence, community, and competitiveness.

Keywords: Common infrastructure; Swedish cohort consortium; epidemiological research; pilot study; rare outcomes.

MeSH terms

  • Biomedical Research / methods
  • Cohort Studies
  • Ethics, Medical
  • Genetic Association Studies
  • Humans
  • International Cooperation
  • Outcome Assessment, Health Care
  • Pilot Projects
  • Proportional Hazards Models
  • Prospective Studies
  • Registries*
  • Research Design
  • Risk Factors
  • Subarachnoid Hemorrhage / diagnosis
  • Subarachnoid Hemorrhage / epidemiology
  • Sweden / epidemiology