"Something that happens at home and stays at home": An exploration of the lived experience of young carers in Western Australia

Health Soc Care Community. 2018 Jul;26(4):572-580. doi: 10.1111/hsc.12547. Epub 2018 Feb 19.

Abstract

There are approximately 350,000 young carers in Australia, yet their experience is not well understood. Young carers face adversities and disenfranchisement by being a young person in a caring role, and the role can affect other areas of their lives. We explored the lived experiences of young carers, aged 14-25 years (N = 13), from Western Australia through in-depth semi-structured interviews. A phenomenological approach was adopted. A thematic analysis of the transcribed interview data revealed four key themes. "Lessons from the experience" articulates the perceived benefits of the role and the themes: "navigating competing demands," "desire for normalcy" and "lost in the system" capture the struggles and complexities associated with being a young carer. Although there are challenges to being a young carer, it is something that young carers report can be beneficial and something that is done for those they love.

Keywords: costs and benefits of care; hidden carer; informal care; lived experience; young carer.

MeSH terms

  • Adolescent
  • Adult
  • Caregivers / psychology*
  • Female
  • Humans
  • Interviews as Topic
  • Love
  • Male
  • Western Australia
  • Young Adult