Needs of Adolescents and Young Adults with Neurodevelopmental Disorders: Comparisons of Young People and Parent Perspectives

Hanna Eklund; James Findon; Tim Cadman; Hannah Hayward; Declan Murphy; Philip Asherson; Karen Glaser; Kiriakos Xenitidis

doi:10.1007/s10803-017-3295-x

Needs of Adolescents and Young Adults with Neurodevelopmental Disorders: Comparisons of Young People and Parent Perspectives

J Autism Dev Disord. 2018 Jan;48(1):83-91. doi: 10.1007/s10803-017-3295-x.

Authors

Hanna Eklund¹, James Findon², Tim Cadman², Hannah Hayward², Declan Murphy², Philip Asherson³, Karen Glaser⁴, Kiriakos Xenitidis²

Affiliations

¹ Department of Forensic and Neurodevelopmental Science, Institute of Psychiatry, Psychology & Neuroscience, King's College London, De Crespigny Park, London, SE5 8AF, UK. hanna.eklund@kcl.ac.uk.
² Department of Forensic and Neurodevelopmental Science, Institute of Psychiatry, Psychology & Neuroscience, King's College London, De Crespigny Park, London, SE5 8AF, UK.
³ MRC Social Genetic and Developmental Psychiatry, Institute of Psychiatry, Psychology & Neuroscience, King's College London, De Crespigny Park, London, SE5 8AF, UK.
⁴ Department of Social Sciences, Health and Medicine, Institute of Gerontology, King's College London, Strand, London, WC2R 2LS, UK.

Abstract

This study used the Camberwell Assessment of Need for adults with Developmental and Intellectual Disabilities (CANDID) to examine the social, physical health and mental health needs of 168 young people (aged 14-24 years) with neurodevelopmental disorders and compared young person and parent ratings of need. Agreement was poor in 21 out of 25 domains. Parents consistently reported higher levels of need than young people in the majority of domains although young people with ADHD reported significantly more needs in physical health, eyesight/hearing, seizures, other mental health problems and safety of others than their parents. Both parent and young person perspectives of needs are necessary to ensure that needs that are predictive of current or future poor outcomes are not missed.

Keywords: ADHD; ASD; Needs assessment; Neurodevelopmental disorders; Young adulthood.

Publication types

Comparative Study

MeSH terms

Adolescent
Female
Health Services Needs and Demand* / trends
Humans
Intellectual Disability / diagnosis
Intellectual Disability / psychology*
Intellectual Disability / therapy*
Male
Mental Health* / trends
Parents / psychology*
Prospective Studies
Young Adult

Abstract

Publication types

MeSH terms

Grants and funding