The validity of self-report of eye diseases in participants with vision loss in the National Eye Health Survey

Sci Rep. 2017 Aug 18;7(1):8757. doi: 10.1038/s41598-017-09421-9.

Abstract

We assessed the validity and reliability of self-report of eye disease in participants with unilateral vision loss (presenting visual acuity worse than 6/12 in the worse eye and equal to or better than 6/12 in the better eye) or bilateral vision loss (presenting visual acuity worse than 6/12 in the better eye) in Australia's National Eye Health Survey. In total, 1738 Indigenous Australians and 3098 non-Indigenous Australians were sampled from 30 sites. Participants underwent a questionnaire and self-reported their eye disease histories. A clinical examination identified whether participants had cataract, age-related macular degeneration, diabetic retinopathy and glaucoma. For those identified as having unilateral or bilateral vision loss (438 Indigenous Australians and 709 non-Indigenous Australians), self-reports were compared with examination results using validity and reliability measures. Reliability was poor for all four diseases (Kappa 0.06 to 0.37). Measures of validity of self-report were variable, with generally high specificities (93.7% to 99.2%) in all diseases except for cataract (63.9 to 73.1%) and low sensitivities for all diseases (7.6% in Indigenous Australians with diabetic retinopathy to 44.1% of non-Indigenous Australians with cataract). This study suggests that self-report is an unreliable population-based research tool for identifying eye disease in those with vision loss.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Australia / epidemiology
  • Eye Diseases / diagnosis
  • Eye Diseases / epidemiology*
  • Eye Diseases / etiology
  • Female
  • Humans
  • Male
  • Middle Aged
  • Odds Ratio
  • Public Health Surveillance
  • Reproducibility of Results
  • Self Report
  • Sensitivity and Specificity
  • Surveys and Questionnaires
  • Vision Disorders / diagnosis
  • Vision Disorders / epidemiology*
  • Vision Disorders / etiology