The global cardiovascular magnetic resonance registry (GCMR) of the society for cardiovascular magnetic resonance (SCMR): its goals, rationale, data infrastructure, and current developments

J Cardiovasc Magn Reson. 2017 Jan 20;19(1):23. doi: 10.1186/s12968-016-0321-7.

Abstract

Background: With multifaceted imaging capabilities, cardiovascular magnetic resonance (CMR) is playing a progressively increasing role in the management of various cardiac conditions. A global registry that harmonizes data from international centers, with participation policies that aim to be open and inclusive of all CMR programs, can support future evidence-based growth in CMR.

Methods: The Global CMR Registry (GCMR) was established in 2013 under the auspices of the Society for Cardiovascular Magnetic Resonance (SCMR). The GCMR team has developed a web-based data infrastructure, data use policy and participation agreement, data-harmonizing methods, and site-training tools based on results from an international survey of CMR programs.

Results: At present, 17 CMR programs have established a legal agreement to participate in GCMR, amongst them 10 have contributed CMR data, totaling 62,456 studies. There is currently a predominance of CMR centers with more than 10 years of experience (65%), and the majority are located in the United States (63%). The most common clinical indications for CMR have included assessment of cardiomyopathy (21%), myocardial viability (16%), stress CMR perfusion for chest pain syndromes (16%), and evaluation of etiology of arrhythmias or planning of electrophysiological studies (15%) with assessment of cardiomyopathy representing the most rapidly growing indication in the past decade. Most CMR studies involved the use of gadolinium-based contrast media (95%).

Conclusions: We present the goals, mission and vision, infrastructure, preliminary results, and challenges of the GCMR.

Trial registration: Identification number on ClinicalTrials.gov: NCT02806193 . Registered 17 June 2016.

Keywords: Cardiovascular magnetic resonance; Imaging; Patient management; Registry; Therapeutic implications.

Publication types

  • Multicenter Study

MeSH terms

  • Cardiovascular Diseases / diagnostic imaging*
  • Cardiovascular Diseases / pathology
  • Cardiovascular Diseases / physiopathology
  • Cardiovascular Diseases / therapy
  • Contrast Media / administration & dosage
  • Cooperative Behavior
  • Humans
  • International Cooperation
  • Internet / organization & administration
  • Magnetic Resonance Imaging*
  • Organizational Objectives
  • Predictive Value of Tests
  • Prognosis
  • Registries*
  • Research Design*
  • Societies, Scientific*

Substances

  • Contrast Media

Associated data

  • ClinicalTrials.gov/NCT02806193