Optimising the International Classification of Diseases to identify the maternal condition in the case of perinatal death

BJOG. 2016 Nov;123(12):2037-2046. doi: 10.1111/1471-0528.14246. Epub 2016 Aug 16.

Abstract

Objective: The WHO application of the tenth edition of the International Classification of Diseases (ICD-10) to deaths during the perinatal period (ICD Perinatal Mortality, ICD-PM) captures the essential characteristics of the mother-baby dyad that contribute to perinatal deaths. We compare the capture of maternal conditions in the existing ICD-PM with the maternal codes from the WHO application of ICD-10 to deaths during pregnancy, childbirth, and the puerperium (ICD Maternal Mortality, ICD-MM) to explore potential benefits in the quality of data received.

Design: Retrospective application of ICD-PM.

Setting: South Africa and the UK.

Population: Perinatal death databases.

Methods: The maternal conditions were classified using the ICD-PM groupings for maternal condition in perinatal death, and then mapped to the ICD-MM groupings of maternal conditions.

Main outcome measures: Main maternal conditions in perinatal deaths.

Results: We reviewed 9661 perinatal deaths. The largest group (4766 cases, 49.3%) in both classifications captures deaths where there was no contributing maternal condition. Each of the other ICD-PM groups map to between three and six ICD-MM groups. If the cases in each ICD-PM group are re-coded using ICD-MM, each group becomes multiple, more specific groups. For example, the 712 cases in group M4 in ICD-PM become 14 different and more specific main disease categories when the ICD-MM is applied instead.

Conclusions: As we move towards ICD-11, the use of the more specific, applicable, and relevant codes outlined in ICD-MM for both maternal deaths and the maternal condition at the time of a perinatal death would be preferable, and would provide important additional information about perinatal deaths.

Tweetable abstract: Improving the capture of maternal conditions in perinatal deaths provides important actionable information.

Keywords: ICD; Classification; global; maternal conditions; perinatal death; stillbirth.

Publication types

  • Comparative Study
  • Multicenter Study

MeSH terms

  • Adult
  • Cause of Death
  • Female
  • Humans
  • Infant, Newborn
  • International Classification of Diseases / statistics & numerical data*
  • Maternal Mortality*
  • Perinatal Death* / etiology
  • Perinatal Death* / prevention & control
  • Pregnancy
  • Retrospective Studies
  • South Africa / epidemiology
  • United Kingdom / epidemiology