Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making

Karine Toupin-April; Jennifer Barton; Liana Fraenkel; Linda Li; Viviane Grandpierre; Francis Guillemin; Tamara Rader; Dawn Stacey; France Légaré; Janet Jull; Jennifer Petkovic; Marieke Scholte-Voshaar; Vivian Welch; Anne Lyddiatt; Cathie Hofstetter; Maarten De Wit; Lyn March; Tanya Meade; Robin Christensen; Cécile Gaujoux-Viala; Maria E Suarez-Almazor; Annelies Boonen; Christoph Pohl; Richard Martin; Peter S Tugwell

doi:10.3899/jrheum.141205

Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making

J Rheumatol. 2015 Dec;42(12):2442-7. doi: 10.3899/jrheum.141205. Epub 2015 Apr 15.

Authors

Karine Toupin-April¹, Jennifer Barton¹, Liana Fraenkel¹, Linda Li¹, Viviane Grandpierre¹, Francis Guillemin¹, Tamara Rader¹, Dawn Stacey¹, France Légaré¹, Janet Jull¹, Jennifer Petkovic¹, Marieke Scholte-Voshaar¹, Vivian Welch¹, Anne Lyddiatt¹, Cathie Hofstetter¹, Maarten De Wit¹, Lyn March¹, Tanya Meade¹, Robin Christensen¹, Cécile Gaujoux-Viala¹, Maria E Suarez-Almazor¹, Annelies Boonen¹, Christoph Pohl¹, Richard Martin¹, Peter S Tugwell¹

Affiliation

¹ From the Children's Hospital of Eastern Ontario Research Institute and Department of Pediatrics, University of Ottawa, Ottawa, Ontario, Canada; VA Portland Health Care System, and Oregon Health and Science University, Portland, Oregon, USA; Department of Internal Medicine, Yale University, New Haven, Connecticut, USA; Department of Physical Therapy, University of British Columbia and Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Rheumatic Diseases, University of Lorraine, Nancy, France; Institute of Population Health, Centre for Global Health, and School of Nursing, University of Ottawa, Ottawa, Ontario, Canada; Department of Family Medicine and Emergency Medicine, Université Laval, Québec City, Québec, Canada; Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada; University of Twente, Enschede; VU Medical Centre, Amsterdam, The Netherlands; Department of Medicine, University of Sydney, Institute of Bone and Joint Research; University of Western Sydney, Sydney, Australia; Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, University of Copenhagen, Bispebjerg and Frederiksberg Hospitals, Copenhagen, Denmark; Department of Rheumatology, Nîmes University Hospital, Montpellier I University, Nîmes, France; Department of General Internal Medicine, Section of Rheumatology and Clinical Immunology, University of Texas MD Anderson Cancer Center, Houston, Texas, USA; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht, The Netherlands; Department of Internal Medicine II Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Teaching Hospital of the Charité, University Medicine, Berlin, Germany; Rheumatology, Michigan State University College of Human Medic

Abstract

Objective: Despite the importance of shared decision making for delivering patient-centered care in rheumatology, there is no consensus on how to measure its process and outcomes. The aim of this Outcome Measures in Rheumatology (OMERACT) working group is to determine the core set of domains for measuring shared decision making in intervention studies in adults with osteoarthritis (OA), from the perspectives of patients, health professionals, and researchers.

Methods: We followed the OMERACT Filter 2.0 method to develop a draft core domain set by (1) forming an OMERACT working group; (2) conducting a review of domains of shared decision making; and (3) obtaining opinions of all those involved using a modified nominal group process held at a session activity at the OMERACT 12 meeting.

Results: In all, 26 people from Europe, North America, and Australia, including 5 patient research partners, participated in the session activity. Participants identified the following domains for measuring shared decision making to be included as part of the draft core set: (1) identifying the decision, (2) exchanging information, (3) clarifying views, (4) deliberating, (5) making the decision, (6) putting the decision into practice, and (7) assessing the effect of the decision. Contextual factors were also suggested.

Conclusion: We proposed a draft core set of shared decision-making domains for OA intervention research studies. Next steps include a workshop at OMERACT 13 to reach consensus on these proposed domains in the wider OMERACT group, as well as to detail subdomains and assess instruments to develop a core outcome measurement set.

Keywords: IMPLEMENTATION; OMERACT; OSTEOARTHRITIS; OUTCOME ASSESSMENT; OUTCOMES; SHARED DECISION MAKING.

Publication types

Multicenter Study
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Review

MeSH terms

Aged
Australia
Consensus Development Conferences as Topic*
Decision Making*
Europe
Female
Humans
Male
Middle Aged
North America
Osteoarthritis / diagnosis*
Osteoarthritis / therapy*
Outcome Assessment, Health Care*
Practice Guidelines as Topic
Rheumatology / standards
Risk Assessment

Abstract

Publication types

MeSH terms

Grants and funding