The MG-QOL15 for following the health-related quality of life of patients with myasthenia gravis

Muscle Nerve. 2011 Jan;43(1):14-8. doi: 10.1002/mus.21883.

Abstract

The MG-QOL15 is helpful in informing the clinician about the patient's perception of the extent of and dissatisfaction with myasthenia gravis (MG)-related dysfunction. The aims of this study were to determine the usefulness of the MG-QOL15 for following individuals with MG and to guide clinical researchers who plan to use the MG-QOL15. We assessed sensitivity and specificity for detecting clinical change and evaluated test-retest reliability. Sensitivities and specificities of various cut-points of change in scores are presented. Also presented are means and standard deviations of MG-QOL15 scores for all patients and for subgroups of patients. The test-retest reliability coefficient was 98.6%. The MG-QOL15 has an acceptable longitudinal construct validity. We consider this instrument to be most useful for informing the clinician about the patient's perception and tolerance of MG-related dysfunction. More objective measures, such as the MG Composite, should also be used to follow disease severity.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't
  • Validation Study

MeSH terms

  • Health Status*
  • Health Surveys / methods*
  • Humans
  • Mental Health*
  • Myasthenia Gravis / diagnosis*
  • Myasthenia Gravis / psychology*
  • Predictive Value of Tests
  • Prospective Studies
  • Quality of Life / psychology*
  • Reproducibility of Results
  • Sensitivity and Specificity
  • Surveys and Questionnaires / standards*