Consumer information materials for diagnostic breast tests: women's views on information and their understanding of test results

Health Expect. 2003 Dec;6(4):298-311. doi: 10.1046/j.1369-7625.2003.00227.x.

Abstract

Objectives: To explore women's views on diagnostic breast test information and elicit their preferences for this information.

Design: In-depth, face-to-face interview.

Setting and participants: Thirty-seven women who had previously participated in a population-based telephone survey.

Main outcome measures: Qualitative thematic analysis.

Results: Analysis of interview transcripts revealed information about: (1) the wide range of information participants wanted about diagnostic mammography; (2) general reactions to diagnostic breast test information, including positive and negative reactions, views of test accuracy information and perceived influences on information preferences; (3) preferences for information content and presentation including the need for written information, the meaning of statistical information, different views on a simple presentation style, and variation in preferences; and (4) women's understanding of diagnostic test results.

Conclusion: Women want a range of information about diagnostic mammography, which is relevant at different times in the decision-making and testing process. Many women have difficulty interpreting test results.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Attitude to Health*
  • Biopsy, Needle
  • Breast Neoplasms / diagnostic imaging*
  • Breast Neoplasms / pathology*
  • Decision Making
  • Female
  • Humans
  • Mammography
  • Middle Aged
  • New South Wales
  • Patient Education as Topic / methods*
  • Qualitative Research
  • Teaching Materials*